eating

[spysgirl]

hi my name is sue .
i have just joined site so hello to all of you
i am a mum of five daughters age ranging from 22 to 6 ,my youngest daughter kaitlin has asd/adhd ,she is adoreable but also extreamly hard work ,kaitlin recives resbite one weekend a month witch after 4 refusels from restbite carers finally settled on a one to one basis ,,on going to a review meeting i discovered that kaitlins eating ,,ie constant feelings of hungeris die to autisum and the fact she cant tell that shes full ,kaitlin is bigger than the rest of my children she is way higher and hevier than her sister whome is 7 and all of my other daughters at her age ,,just wondered if anyone has heard of this and if ther asd /autistic children are heavy ,,be ineresting to know
also i am having a fight with disability benefits ,,im trying to get hiher rate mobility has anyone had to battle ofr it and has anyone posssibly got any tips ,,, the fact she walks is there argument :evil:

[cyberpedz]

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[annie]

HI I have the very same problem i have claimed disability allowence for my son for ten years and nothing changes with the amount i get even though my son is now 13 and has the level of understanding of a 3-4 year old he has stayed at that level the last 4 years i have claimed but they still say i entittled to no more benifit i am fighting it now i have asked them to look at the claim again but wont hear for about another 6 weeks, i will let you no how it goes. Maybe ask for some kind of home visit for them to see you at home or ask your gp to write to them explaining, Hope that helps.

[spysgirl]

hi anne
thanx so much for replying to my post ,its awful isnt it that everything is a fight ,all were asking for is help to make family life more easier ,if we were unable to cope and asked for the la to put our children into care it would cost them a hell of a lot more ,
my doctor has tried to write to get me further help even just for a blue badge but theres always some policy that for some reason autistisum is not a criteirier yet it is just as dissabling as a physical dissability ,, there is however a bit that says sevier behavorial problems well apart from kaitlin being phycotic shes got a whole list of behaviour problems ,, the annoying thing is in bristol a doctors word is enough to issue a badge in wiltshire its not u have to go through HRM its postcode lotery once again ,,i cant understand why every one is against helping ,,i just lost appeal today for statement for kaitlin so yet another kick in the teeth ,,how is your son ? is he in yr 8 ? how is skl for him ? k keep ur chin up and keep fighting hopefully ull get the result u need ,,keep me posted xx

[annie]

Hiya, it is so disapointing when you get another set back in getting help that parents like us are entittled to, i am so sorry to hear that it hasnt gone your way again It just feels like i have been told to get on with it by myself, My son Arron-Jay is 13 on the 16 may just a week away how fast time has gone, He was 14 months old when told he had minor develope delay his statement stayed that way untill march 08 when his specalists finally accepted to see aj and took me another year after that to finally get his austium ocd and poor understanding confirmed even though he has been at special needs school since he was 3 yrs old Do you have any respite care for Kaitlin i have just been told i not entittled to any for aj i am finding it very hard to cope at the moment i am a single parent aj dad walked out on us when his problems was diganosed i have a 2 1/2 yr old daughter called Carys-Faith her dad hit me when i was pregnant with her so i told him where to go. My health isnt good got joint problems and artritis.
Hope i havent bored you with this reply lol
talk soon
Love Annie, Arron-jay and Carys-faith.

[spysgirl]

hi anne ,i know its awful to be given a diagnosis and then be left to basically get on with it ,, how is aaron now is he ok at skl ?ie socially im dreading secondary skl and its yrs away yet but as we all know it wont be long,,, yes i do now finally get resbite it took a long time alot of tears and in the end i finally said you iether help me or you take kaitlin into care ,,they then emediatly brought in crisis team and agreed to resbite ,though it took 3 resbite carers till i got kaitlin suited to right carer ,, because of her behaviour even the carers refused to take her ,,, terrible ,,but she is now with a one to one lady witch suits kaitlin best ,,i get one weekend a month ,i have no family ie mum dad so january was first night and sleep ihad in 6 years, im sorry to here about your past fellas bloody men they think there so strong but when it comes to real life stuff they run ,, twats well not all men lol ,,,do you go on facebook anne if so add me theres some great support groups on there too xxx

[cyberpedz]

Hi guys it is great you have found each other to talk to and that you have found us but this is the new members area where you intoduce yourself so i am going to move the post to general discusion area. ;-)

[spysgirl]

ok np thank you xxx

[Janice Adamson]

Hi, Sue! Welcome to the site! I have five children as well, Two girls and three boys, respectively.They range in age from five to 17 years old.Four have co-existing disorders, three of them have variants of ASD's.I'm wondering if Kaitlin is on any medications, as they sometimes have an effect on appetite and weight gain.There may be a genetic variant in there as well as she is also taller than your other daughters, which isn't related to weight gain or ASD's. My son's also have OCD and one in particular will hoard food, but he is not any bigger than my other children. I'm not sure how the disability benefits work where you live, I live in Canada. For us there is a section related to perceiving, remembering and thinking -that then classifies some of my children as disabled because even with medications their ability to function is still markedly different than other children of their own age. - Janice